Endometriosis to Chronic Myofascial Pain in the Pelvic area

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I wanted to ask anyone if they have first started out with Endometriosis and then later after multiple laporoscopies, chemical drugs to stop your hormones and then a complete hysterectomy the pain is still there and just as bad or worse than ever. I thought I was crazy for sure after that happened, but something in the back of my head said something else was wrong because I was in the worst pain I had ever had, even left a note for my gyno to "gut me like a fish ASAP. He had to do it C-section due to all the other scar tissue from many laporoscopies in the past. When he came into my room, he said that they found very little of the endometriosis. I thought then something was wrong. When the pain came back it took six different doctors to finally find the one to properly diagnose me. He said that I had taunt bands of muscle in the pelvic region that was causing me all the pain. He knew of a physical therapist that had studied the pelvic region and he sent me to her. The problem was that she moved almost an hour away. It was worth it though because even though the work she did on me was uncomfortable (inter vaginally) and very painful, she did cure me and I was finally pain free for almost two glorious years. Now it is back, but I am completely disabled by it and cannot afford the gas to get to see her or the fact that my car may not make it there the amount of times I need to go. If I ever get my disability then I might actually be able to get better and back off of it, but unfortunately the government doesn't see it that way. My case is in appeals and could take another couple of years. I filed originally in 2006 and then again in 2009. Wish me luck Ya'all! Wondering if anyone else has had this experience?

 
By CK on Mon, 02-13-12, 09:44

I hope that the means to see your amazing physical therapist materialize very soon! Have you spoken to a lawyer that specializes in disability appeals? I know that spending more money to get your disability may seem counterproductive, but fighting this for 6 years seems like a long time and perhaps they can help speed up the process.

Wishing you a wonderful day!

-CK

Sometimes I believe in as many as six impossible things before breakfast-Alice in Wonderland

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