Alone and Frustrated

Hi:
I think the worst part of endo is that no one really understands. I lost my job and have no health insurance and my husband will not add me to his insurance. Most of the time I think he believes it's all in my head. Today I am having a very bad day. Lots of pain in my lower back and very depressed. I pray every day that I can find an open door. Someone who would really give me hope. It's been too long...
Hope you are having a better day than I am.

Hi Char,

I understand perfectly what you're going through with being a student. Right now I am enrolled in H.S and College and keeping up with my 6 classes seems to be more difficult than I thought it would be. Right now my pain is only bad while I am on my period, but that along with my heavy bleeding, I end up missing class all of the time because of this, and teachers just don't seem to understand. I suffered from this for many years, ever since my period started in 6th grade. I had IBS symptoms every month with my period and I would end up missing the whole week of school. Teachers wouldn't understand what I was going through, and they just told me to take some midole and keep going, but it's not that easy.

I just want you to know that I understand what you're going through, but it seems like you're getting more help than I've gotten! For the past 2 years all my doctor wanted to do was put my on birth control. Each time I would start getting leg pain, though (which also added to me missing school and work) and sometimes I couldn't walk. I am now on my 4th prescription of birth control, but I'm not too confident.

I hope some good fortune comes your way and you're able to get the medicine and/or surgery you need. Right now I am just taking birth control and I have to wait and see how things go. I hate waiting and seeing :(

Hey Char,
I'm also in college and my endo makes it impossible to attend class and concentrate sometimes. Contacting your teachers is a bit embarrassing but I've found that they are accommodating and it makes dealing with things a bit easier. I've also had a hard time dealing with pain everyday, it's completely draining. I wish I could help you more, but I haven't found a great way of dealing with it other than making paintings about it.
xo

I can relate completely. Its been a year for me, though I was only diagnosed 5 months ago. Time seems to drag so slowly by.
I am also in college, my first year. I ended up failing half my classes last semester, and am now on what my school calls "academic probation"
Like you, my pain keeps me curled up on my couch most days. I take night classes, so I only have to leave my house 3 times a week.
But I don't see how I can keep doing it. The birth control they have me on, seasonique, helps a lot. But I've gained almost 40 pounds because of it.
I wish I could give you some sort of hope, but right now I'm running short of it myself.
Love and thoughts,
courtney

Hello everyone. I absolutely feel your pain. I am a "survivor" of endomitriosis for now 17 years. I had my right ovary removed due to this horrible disease. I was pain free since then for over ten years but now the pain is back and on my left side.
I am again at a loss as what to do since the many laporospic suregeris did help yet I am being told having them can cause damage to my left ovary, which i obviously want to keep healthy to later have more children.
On the bright side I was able to conceive on one ovary which in fact is a blessing, yet never really thought it would come back on my left side now. I have seen multiple doctors in the past week and may need to see an endomitriosis specialist.
So I am here searching! If anyone has someone they see that they love I'd like to know who and where. I live in northern nj. I have seen an endomitriosis specialist in the city but was not a huge fan. Any insight would help. Thanks.